1 in 300

Next month apart from it being my birthday, it will be 14 months since I was diagnosed with this cruel condition.  It is now progressing, even the simplest of tasks are becoming increasingly difficult for me now.  Such as going to the toilet, I can’t do it on my own anymore.

I constantly feel frustrated and bored sat in either my wheelchair or the riser recliner which is on loan from the MNDA with very little or nothing to do.  I sleep in the riser recliner because it seems to be the only place I can get some significant sleep.  Even the hospital bed is uncomfortable. And my neck is getting weaker.

But here’s a fact about MND and that is a person has a 1 in 300 chance of developing it and it had to be me.  I have suffered more than enough tragedy in my life, I couldn’t even have the good fortune of there being a cure

 

As ever, lots of love

 

Angie xxx